So Kale has EOE as I said before and there is a good chance the other boys do too.
We just got Kasen's lab work back and he was allergic to at least 14 things, including wheat, carrots, pears, sesame seeds, peanuts and so many others I can't remember. He has not seen the GI doctor yet so we are not sure he has the same condition as his brother but all the signs point to the fact that he does.
I have not had a formal meeting with the allergist about all this yet she just told me through the nurse that I am to remove milk, eggs, dairy and peanuts forms Kales diet and milk, watermelon, peanuts and all grains from Kasen's .
I have spent the last few days being completely and utterly overwhelmed by just the thought of how I will possibly remove all those things from their diets. I don't even know where to begin.
I also am unsure of exactly how the allergist picked those specific food s to remove out of all they are allergic to. How do you remove all grains from a kids diet?? So I had a breakdown, actually a few and then I went to work scouring the Internet for information on this disease and allergies and food elimination diets.
I am still overwhelmed and confused and unsure where to go from here.. But I am moving forward. I have a set of questions for the allergist when we see her, a dietitian lined up and an appointment with a second GI for another opinion. We have gone dairy free and peanut free already and are slowly working towards tackling wheat and soy.
After learning more about this disease I am so thankful that my children are not sicker, I feel thankful they are able
To eat at all, as lots of children with this condition have feeding tubes, but I am also sad for them, sad that they have to be different, that there life has to be harder, that our lives have to be harder.
The other two boys will have bloodwork soon and I pray they will be spared the same fate as their brothers but if not, we will deal with that too. But if you have a moment please pray for us. Pray for everyone affected by this horrible disease.
- Posted using BlogPress from my iPhone
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We just got Kasen's lab work back and he was allergic to at least 14 things, including wheat, carrots, pears, sesame seeds, peanuts and so many others I can't remember. He has not seen the GI doctor yet so we are not sure he has the same condition as his brother but all the signs point to the fact that he does.
I have not had a formal meeting with the allergist about all this yet she just told me through the nurse that I am to remove milk, eggs, dairy and peanuts forms Kales diet and milk, watermelon, peanuts and all grains from Kasen's .
I have spent the last few days being completely and utterly overwhelmed by just the thought of how I will possibly remove all those things from their diets. I don't even know where to begin.
I also am unsure of exactly how the allergist picked those specific food s to remove out of all they are allergic to. How do you remove all grains from a kids diet?? So I had a breakdown, actually a few and then I went to work scouring the Internet for information on this disease and allergies and food elimination diets.
I am still overwhelmed and confused and unsure where to go from here.. But I am moving forward. I have a set of questions for the allergist when we see her, a dietitian lined up and an appointment with a second GI for another opinion. We have gone dairy free and peanut free already and are slowly working towards tackling wheat and soy.
After learning more about this disease I am so thankful that my children are not sicker, I feel thankful they are able
To eat at all, as lots of children with this condition have feeding tubes, but I am also sad for them, sad that they have to be different, that there life has to be harder, that our lives have to be harder.
The other two boys will have bloodwork soon and I pray they will be spared the same fate as their brothers but if not, we will deal with that too. But if you have a moment please pray for us. Pray for everyone affected by this horrible disease.
- Posted using BlogPress from my iPhone
